Just caught up with this thread. Haven't read it all, so don't know if I'm repeating something already on.
I'm glad the treatment seems to be working, albeit slowly. The weight loss is fairly normal as all newborns lose some weight in the first few days - I was a midwife for 6 years, and although so much has changed since I last practised, they still come out the same way and things like neo-natal weight loss would be the same!! Also the fact that jaundice is more common and more severe in prem babies. Seems that light therapy is still in use too.
I hope she continues to improve. It is amazing how fast they pick up once the treatment kicks in. Sending hugs and best wishes to you all. Janet